National Bone Marrow Failure Syndrome Awareness Week 2025
You could be the only match for someone with a life-threatening condition
Every three days, an Australian is diagnosed with a Bone Marrow Failure Syndrome. Many are children and young adults, and tragically, 50% will not survive. For many of these patients, a stem cell transplant is their only hope for a cure.
National Bone Marrow Failure Syndrome Awareness Week, 3-9 March 2025, is an initiative of our partner Maddie Riewoldt’s Vision. Together we are dedicated to raising awareness and improving outcomes for those affected by these conditions.
By registering as a stem cell donor, you could be the one person in the world who can save the life of someone facing a Bone Marrow Failure Syndrome.
What are Bone Marrow Failure Syndromes?
Bone Marrow Failure Syndromes are a group of rare but serious conditions where the bone marrow stops producing enough healthy blood cells. This can lead to life-threatening complications, including severe infections, bleeding, and a high risk of developing cancer.
Why do patients need stem cell donors?
For many patients, a stem cell transplant is the only treatment that offers the chance of survival. However, 79% of Australian patients currently rely on international donors to find a match. We need more Australians, especially those aged 18–35, to step up and join the registry to give patients the best chance of finding a life-saving donor right here at home.
Waiting for a match: T-boy's story
Te Waarakihi Hooper Felise is a bright and energetic boy who should be spending his days playing and enjoying childhood. Instead, he is fighting for his life. Diagnosed with aplastic anaemia, his bone marrow has stopped producing the blood cells his body needs to survive. His only hope is a stem cell transplant, but a match has yet to be found. Given his Māori and Pacific heritage, the search is even more difficult. Every day without a donor is a day he fights a battle he shouldn’t have to face alone. Could you be the match he desperately needs?
What do I need to know before I sign up?
Stem cell donation is a safe and simple process that can potentially cure life-threatening diseases. Before you register, it’s important for you to have a good understanding of what it means to be a donor and ensuring you’re committed, should you be someone’s life-saving match.
Eligibility check:
- You’re aged 18-35.
- Generally healthy (we’ll cover this in more detail in the next steps).
Signing up means:
- You’re committing to donate to anyone, globally needing a match.
- You’re committed to being available if called upon.
- We’ll stay in contact, keeping you informed and ready for the call.
Donation likelihood:
- Matches are rare; they are based on genetic compatibility.
- BUT while not everyone will donate, your registration increases chances for those in need.
If you’re a match:
- We’ll call you to let you know!
- Donation involves a simple procedure with minimal discomfort.
- We support you throughout, ensuring top medical care and thorough information.
