Maddie Riewoldt’s Vision
Maddie Riewoldt’s Vision is the only organisation in Australia dedicated to driving Bone Marrow Failure Syndrome research, advocacy, education and support for patients and families. Established in 2015 by the Riewoldt family, the organisation is committed to funding innovative research aimed at improving the prevention, diagnosis, and treatment of these life-threatening conditions. In addition to their research efforts, Maddie’s Vision provides critical support to patients and families through their Tele-Support Service and Peer Support Program.
Working together to save lives
Our partnership with Maddie Riewoldt’s Vision is dedicated to raising awareness of Bone Marrow Failure Syndromes and the vital role of stem cell transplants in treatment. Together, we work to ensure that everyone affected by these syndromes has the best chance of finding a matched stem cell donor when they need it most. By combining our efforts, we aim to improve outcomes for patients and increase understanding of the importance of stem cell donation in saving lives.
Need support? Maddie Riewoldt’s Vision is here to help.
The Maddie’s Vision Tele-Support Service can provide support and information at every stage of the clinical journey for patients and families impacted by Bone Marrow Failure Syndromes. Their Peer Support Program connects patients and families in a safe, confidential space to share experiences, offer advice, and provide support. If you need help, contact Maddie’s Vision today.
We also encourage you to become a potential donor for those facing Bone Marrow Failure Syndromes. You could be the one to save a life.
What do I need to know before I sign up?
Stem cell donation is a safe and simple process that can potentially cure life-threatening diseases. Before you register, it’s important for you to have a good understanding of what it means to be a donor and ensuring you’re committed, should you be someone’s life-saving match.
Signing up means:
- You’re committing to donate to anyone, globally needing a match.
- You’re committed to being available if called upon.
- We’ll stay in contact, keeping you informed and ready for the call.
Donation likelihood:
- Matches are rare; they are based on genetic compatibility.
- BUT while not everyone will donate, your registration increases chances for those in need.
If you’re a match:
- We’ll call you to let you know!
- Donation involves a simple procedure with minimal discomfort.
- We support you throughout, ensuring top medical care and thorough information.
Swab at home
Important Information
We’re incredibly grateful for everyone who wants to make a difference by joining our registry. When it comes to donating stem cells, younger donors are preferred because they lead to better outcomes for patients. This focus on young donors helps us ensure that the patients’ transplants have the best chance of success.
While we do keep donors on the registry until their 60th birthday in case they become the perfect match for someone in need, we have to be mindful of our limited resources. Our priority is to engage those who can provide the greatest potential for successful transplants, which is why we encourage those aged between 18 and 35 years old to register.
If you’re outside this age range, please know that your passion and willingness to help are valued, and we appreciate your support in spreading the word about the importance of donating stem cells. See our How to help section for ways you can help our mission.
We understand that you may want to help a loved one who is unwell, and it’s natural to want to make a difference in their situation. However, when you register as a donor, you’re committing to help anyone in need of a stem cell transplant.
Unless you share the same parents, the chances of being a match for your loved one are very slim. Instead, by joining the registry, you have the opportunity to assist someone else who may be facing a similar situation to what your loved one is experiencing.
Your decision to register means you could potentially save the life of someone you’ve never met—someone who, like your loved one, is in need of support. While it might not be for your friend or relative, your willingness to help can make a significant difference in the lives of others in need.
If you match a patient, you will be contacted to confirm that you are healthy and still willing and available to donate. A blood sample will be taken to confirm the match.
Before donating, an independent specialist will assess you medically, explain the process thoroughly and answer any questions that you may have. Your health and well-being before and after donation are equally important.
Find out more about the donation process.