National Bone Marrow Failure Syndrome Awareness Week 2026
Raise your voice. Save lives.
Bone Marrow Failure Syndrome Awareness Week returns 2–8 March 2026, calling Australians to stand with the children, young people and families living with these rare and life‑threatening conditions.
Every three days, someone in Australia is diagnosed with a Bone Marrow Failure Syndrome. Many are under 25. Half will not survive. For many, a stem cell transplant offers their only chance of a cure. But finding a donor match is still an enormous hurdle for Australian patients, especially those from diverse backgrounds.
This year, we’re joining Maddie Riewoldt’s Vision and Lifeblood to elevate national awareness and highlight how everyday action can help save lives. Donating blood or joining the stem cell donor registry plays a vital role in supporting people through long, complex and often isolating treatment journeys.
Why this week matters
A Bone Marrow Failure Syndrome diagnosis can reshape a family’s life overnight. Patients often need ongoing blood transfusions to stay alive, and many rely on finding a stem cell donor who is a suitable match. Most Australian patients still look overseas for donors because our local donor pool is too small.
New data shows:
- Australians with south Asian, Māori, Pacific, Middle Eastern or mixed heritage face the lowest chance of finding a match locally.
- If Australia builds a donor pool of 250,000 younger donors and adopts emerging mismatch approaches, match rates could rise to 75% or more across all communities.
That’s why every new stem cell donor counts.
BEGIN YOUR ENROLMENTHow Australians can make a difference
You can support this national effort by:
- Joining the stem cell donor registry (that’s us!) if you’re 18–35 and in good health.
- Donating blood through Lifeblood, which many patients rely on throughout their treatment.
- Using your voice – sharing the week’s messages, resources and stories to grow awareness across your community.
Together, these actions strengthen the support system that thousands of people depend on.
What do I need to know before I sign up?
Stem cell donation is a safe and simple process that can potentially cure life-threatening diseases. Before you register, it’s important for you to have a good understanding of what it means to be a donor and ensuring you’re committed, should you be someone’s life-saving match.
Eligibility check:
- You’re aged 18-35.
- Generally healthy (we’ll cover this in more detail in the next steps).
Signing up means:
- You’re committing to donate to anyone, globally needing a match.
- You’re committed to being available if called upon.
- We’ll stay in contact, keeping you informed and ready for the call.
Donation likelihood:
- Matches are rare; they are based on genetic compatibility.
- BUT while not everyone will donate, your registration increases chances for those in need.
If you’re a match:
- We’ll call you to let you know!
- Donation involves a simple procedure with minimal discomfort.
- We support you throughout, ensuring top medical care and thorough information.
